Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Wednesday, March 30, 2011

Light it up Blue

April is Autism awareness month and there are so many great happenings to share that will help promote the awareness of the affects of autism on individuals, families, your neighborhoods, schools and the world. For me and my family we live every day with the reality of life with Autism and how it impacts our daughter.  While I am often hesistant to share "our story" as everyone has strong opinions and thoughts about the subject I will say this...it has been life changing for us.

We are okay with being weird according to everyone elses standards. We celebrate our childs differences & her quirky-ness. We advocate diversity & acceptance versus dwelling on differences. We try to empower her. We coddle her sensitivity and compassion for seemingly un-important things...we hope she holds this in her heart even as an adult. We do not think she needs "fixing" we are proud to call Kaia Allison our daughter.

Off the soap box...
One fun way to participate and show your support is by lighting it up blue...change your lightbulbs to blue as a show of support. It's like giving a great big hug to all of those touched by Autism ; ) Get your blue bulbs at Home Depot for $1.65!!!

Locally, here are some Autism related events you can participate in!


April 1st “Light it Up Blue” Campaign, Panera Bread Autism Fundraiser, Buy a Smoothie and proceeds go to Autism Speaks, and change your porch light to blue…

April 2nd-WORLD AUTISM AWARENESS DAY & Sensory Sensitive Movie “HOP” at Fiesta AMC in Fayetteville 10:00am

April 8th – Autism Support Mtg. 6-7:30 Nancy Kay, Local Lifecoach/Counselor speaking about Stress Relief for the Families.

April 15th/15 - Crop for a Cause Scrapbooking Fundraiser Event, by 2 Katie Designs. Visit http://www.2katiedesigns.com/ for more information.
May 7th- THE EVENT!!! 2nd ANNUAL AUTISM WALK 6:00am setup-12:00pm clean up!!
June 6th NATURALS AUTISM AWARENESS NIGHT 6:00pm. Tickets $8($4 goes to NWA Autism Support Group)


MORE INFOR ABOUT LIGHT IT UP BLUE:


http://www.autismspeaks.org/press/world_autism_awareness_day_light_it_up_blue.php

Autism Speaks Kicks off World Autism Awareness Day and Autism Awareness Month Celebration with its Light It Up Blue Campaign


Over 500 Iconic Buildings and Landmarks Around the World will Shine a Bright Blue Light on Autism

Autism Speaks Launches New PSA Starring 5th Graders from Pelham, N.Y. and Introduces a FREE Light It Up Blue App Available through the iTunes Store NEW YORK, N.Y. (March, 24 2011) – Autism Speaks, North America's largest autism science and advocacy organization, today announced its 2nd annual Light It Up Blue (LIUB) campaign – a unique global initiative to celebrate World Autism Awareness Day and help raise funds and awareness of autism as a growing public health crisis.



LIUB will begin on the evening of April 1 when more than 500 structures in over 120 U.S. cities and 25 countries will join Autism Speaks to shine a bright light on autism. Iconic landmarks around the world – including the Empire State Building and the Intrepid Sea, Air & Space Museum in New York City, the Willis Tower in Chicago, Universal Studios in Hollywood and Orlando, STAPLES Center in Los Angeles, and the Rock and Roll Hall of Fame in Cleveland, along with the Niagara Falls and CN Tower in Canada, Christ the Redeemer Statue in Brazil and the Sydney Opera House in Australia – as well as airports, bridges, museums, concert halls, schools/universities, restaurants, and retail stores, will light up in bright blue to help kick off Autism Awareness Month and celebrate World Autism Awareness Day on April 2.



The public can actively participate in LIUB by supporting the campaign virtually with the launch of a free Light It Up Blue iPhone App and new Build a Blue Website. The LIUB app is available at the iTunes Store and allows users to become part of this global initiative by turning their own pictures blue with a choice of five different style frames. Americans are encouraged to upload the photos to the live stream on LightItUpBlue.org. In an effort to help raise much needed funds for research, participants can also Build a Blue Website and ask friends and family to support Autism Speaks by making a donation to their personal page.



In addition, Autism Speaks will launch a new 30 second PSA starring 5th graders from Pelham, N.Y., singing an original song composed by one of their classmates for LIUB. The PSA is set to air starting March 21 on broadcast and cable television and SiriusXM satellite radio and is live on AutismSpeaks.org. As part of its ongoing, award-winning public service ad campaign, to promote autism awareness and encourage participation in the LIUB initiative, Autism Speaks has once again produced web banners that can be downloaded for free.



Individuals interested in finding fun and creative ways to participate in LIUB should visit LightItUpBlue.org. The website provides a number of ideas from hosting autism-themed gatherings to viewings of autism-themed films and TV programs to wearing the Autism Speaks puzzle piece pin or by purchasing specially marked blue light bulbs and LED lanterns sold exclusively at Home Depot to light the exterior of your house. The site also accepts donations to fund autism awareness and research efforts.



“We are very excited to see all these landmark buildings, some for the second year now, illuminated in blue as part of our Light It Up Blue campaign to support World Autism Awareness Day and Autism Awareness Month,” says Suzanne Wright, co-founder of Autism Speaks. “We also want to give a special thank you to our corporate and retail partners for their dedication and the generosity they have shown to this cause. Together, we will light the skies like a beacon of hope and ensure that our message of autism awareness will reach millions around the globe.”



The following Autism Speaks corporate and retail partners will Light It Up Blue by raising autism awareness in stores starting on April 1 and 2:



Toys“R”Us

Casey's General Stores

Build-A-Bear

Dollar General

etnies

FelCor Lodging Trust

Gaylord Hotels

LAMAR Digital Media

Lindt

The Home Depot

White Castle

Zappos

Zale Corporation Bergdorf Goodman

Bloomingdale's

Coldwater Creek

Elizabeth Arden

Lord & Taylor

Neiman Marcus

Nest Fragrances

Ralph Lauren

Scentsy

The NBC Experience Store

T.J. Maxx

Walgreens











Saturday, June 7, 2008

Autism Sucks

So we had the school talent show last night which went well as far as the performance part. Kaia was so cute, all dolled up with make-up and she waited to go on stage perfectly with her class up in the balcony. She knew the whole dance and did great up there – I was so proud. Mom videod and I took pics. Kaia told me that evening she was nervous when she saw the crowd but you couldn’t tell! However, after the show was over was a different story. 

The last number was a teacher finale and they released a bunch of balloons at the end. She really wanted to have a balloon and by the time I figured out what she wanted and we got to the stage they were all taken. Major melt down. Right in front of the auditorium, in front of the principle and assistant principle…crawling in the corner…totally embarrassing. I got her to walk out, half chasing her into the parking lot. Hearing several kids comment about how Kaia always gets so MAD at school. I finally had to throw her over my shoulder and pack her out to the car. Sweating my butt off and huffing and puffing.

 It sucked all around.

I just kept you were there to help me, so I wasn’t dealing with the situation on my own. She is almost too big for me to pick up like that so I don’t know what I will do. It scares me to think of what she is going to be like when she gets older. Her temper is getting worse and I don’t know what to do.

Saturday, July 21, 2007

My Sweet Kaia & Autism Thoughts

I hate to admit this but I haven’t prayed for you not to have Autism my sweet Kaia.

 Sounds weird huh...coming from a woman who believes whole heartedly in the miracle working power of prayer. However, I am scared that Autism is so much of who you are that you wouldn’t be you if I asked God to take it away.

I must be demented to in some way to hold the key to your world but not want to free you…but I have to justify that with the fact that I know you are happy, you don’t realize (yet) that you are different and you are content with your life.

On the other side of that, wouldn’t a person who has been blind their entire life to suddenly receive sight be thankful and find more joy. I don’t know. These are the crazy things I ponder as I re-discover my hopes for you.

Above all things I want you to love God and serve God and this disability doesn’t hinder that or change that one bit.

Mama loves you Sweet Kaia.
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